I am a 28 year old, child of God, wife and mother. God has blessed us with 4 beautiful girls on Earth and 1 angel in heaven! God is the center of our home and my life.
So after talking with Lisa, my dear friend whose son has Lyme disease, and with people on different message boards who all have Lyme including a doctor I believe there is a 99.9% chance that what I have is Lyme disease. It fits all of my symptoms and explains everything. Sadly not everyone in the medical community agrees on what Lyme disease can do to you so no many doctors are knowledgeable in it and it can take many doctors and years to get a diagnosis. The tests for Lyme are not accurate and yield a lot of false positive or false negatives. Finding a doctor who is lyme literate is hard and there are only two in our area and due to the fight in the medical community insurance does not cover these doctors. I will be making an appointment to get into the one close to us to see what we can do. So I think I still have a long journey in front of me but at least I feel that I am now going in the right direction.
I really want to thank my friend Lisa for being supportive and not pushing this diagnosis on me months ago when she knew all along this is what it was, she didn't want to be a pushy person who tells you what to do. I do wish I would have listened to her better and not put so much trust in my earlier doctors.
There is a film that was made about Lyme disease. I have not seen it yet, Lisa is going to lend it to me but here is a trailer for it.
It has been a while since I have given an update on my health situation. I am having more good days but still have a lot of pain in my legs and the feeling of ice going through my feet. I got the results back of my latest MRI and it was normal. I still have more blood work and an evoked potential test to be done in the next two weeks. I am starting to believe that I have Lyme's disease, I have thought that this is what I had before but the doctors all blew it off. Soon after getting back from a trip to Arkansas in July of 2008 I started having pregnancy problems at the same time a friend of ours little boy, who also went on the trip, started having trouble. He was diagnosed with Lyme disease a few months later. I have told this to all of the doctors I have seen and they all said that they don't believe that I had it, especially since I never had a rash. One of the doctors did do a blood test to make me be quiet but it was an inaccurate one and none of the doctors cared that this test didn't work for our friend's son and that there was a special test we needed to order, they also didn't care that he didn't have the red bulls-eye rash either. I just find it hard to believe that we would both develop similar issues at the same time, I mean what are the odds? As I sit here over a year later I feel like my life has come to a halt. I hate being in pain and I hate that our lives have changed so drastically. I don't understand why the doctors wont listen to what I have to say and why have I let them just talk me out of what I believe? I am hoping to find someone who knows someone with knowledge of the disease so I can hopefully get some answers. I am really ready to move on and I pray that I can sometime soon.
Anyways....
Happy Thanksgiving everyone! I hope you all have a wonderful and blessed day!
I am in need of picking back up on one of my hobbies. I would love to have a digital scrapbook challenge. Each week we would have a them and we would just have to do 1 layout for that theme. We could either do a layout every week or every other week for those with a busy schedule. Let me know if you are interested as I would really like to get this going! Here are some pages I worked on tonight!
Last night Chris and I were talking about a conversation that he and Emma had before school. Emma asked Chris how Santa gets all of the presents around. We had always decided that when the girls start to ask questions like this about Santa we were going to be honest with them. So they had a 10 minute conversation about how Santa isn't real and that the real meaning behind Christmas is the birth of our Savior, which she already understands that part. Even after this conversation Chris said he left the conversation feeling that Emma still believed in Santa. We are not sure where to go from here. We want to be honest with our kids and make sure they know the real reason for the season but after we explained it there was still some thought in Emma's mind that there might be a Santa. In our home we don't talk about Santa, when we talk about Christmas it is always about Jesus being born. We make sure that the girls know that it is fun to get presents but that isn't what it is really about. Our girls get 3 gifts each Christmas, 1 for each of the wise men. They usually get a need item, a want item, and a family item(like a game everyone can play). We live for God in our house each and everyday. We start with prayers in the morning, Emma now prays at school, we pray at dinner, and at bed and anytime in between. We have a bible lesson that I teach them(currently teaching out of Leading Little Ones to God). Chris and I both pray and read our bible and feel that we have set up the right environment for our girls to lead a Christ centered life. We know that these daily tasks our family feels is normal is what is really going to leave more of an impact than what we tell them about Santa. We just don't know what to do. We know our #1 goal is to be honest to the girls and let them know the real meaning of the season. We want them to know that Santa is a fun thing but not a real thing. So we thought we knew how to give this talk to Emma but she may still believe there is a Santa, so what do we do? So I rambled but what do you expect from me. So what are your thoughts on this whole subject?
So I am sure most of my readers are aware that in 31 days 23 hours and 2 mintues I will be on a plane and headed to Walt Disney World! I am not the least bit excited at all ;-) Ok I may be just a little excited. One of my favorite things about Walt Disney World are the fireworks at Magic Kingdom, they do them every night, weather permitting. The fireworks they are currently doing are called Wishes and I think it is one of my favorite shows that they have had. This youtube poster, videorobo, is a Walt Disney World fantic and shot an amazing video of the fireworks show and I wanted to share it with you all! The video is in two parts! I hope you enjoy them as much as I do!
I can't believe I am about to write this but our dog chewed up Madison's glasses and ate part of one of the lenses. Sadly our vision insurance doesn't cover another pair for Madison until next August so this had to come out of our pockets :-(
After we got Emma from school we took a trip to Wal-Mart to find her new pair of glasses! This was the first time that she actively helped pick out her glasses and was able to pick out which ones she liked and didn't. Before this she was just too young to care and there weren't many options for her. She ended up picking out a cute pink pair. They do look really cute, I should have gotten a picture with my Iphone but didn't. The thing we aren't a big fan of is that they are Spongebob Square Pants, we don't let our kids watch that show. He is on the glasses on the arm but he is small. She picked them out before she saw Spongebob so she didn't pick them out because of him. She does look cute though. She is super excited about them and hates that she has to wait a week before she gets them! I will take a picture of her in them!
Here is a picture of them!
I still can't believe that our dog chewed up the glasses and ate part of the lenses, we have a crazy dog!
